News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Top 5 Frequently Asked Questions from August 2025
Welcome to this month’s insights from the MND NSW Info Line! Every month, the MND NSW Info Line answers hundreds of questions from people living with...
Speech Pathology Week: Aids, equipment and assistive technology
Up to 80% of people diagnosed with MND will experience changes to their speech at some point during their journey with the disease. This is due to mus...
Walk to Defeat MND Penrith 2025
We’d like to thank everyone who attended and supported Walk to Defeat MND Penrith recently. The 2025 event was our biggest one yet in Western Sydney,...
Top-5 Frequently Asked Questions from July 2025
Welcome to this month’s insights from the MND NSW Info Line! Each month the MND NSW Info Line responds to hundreds of enquires from people living with...
Share your Secrets this Dying to Know Day
Dying to Know Day is a national day that encourages Australians of all ages to start important and empowering conversations about death, dying and end...
Understanding Bulbar Motor Neurone Disease
Motor Neurone Disease (MND) is an umbrella term for a group of diseases. One disease classified as a type of MND is Progressive Bulbar Palsy (PBP). PB...
Calling all MND carers in NSW, ACT and the NT – Share your stories!
National Carers Week 2025 is fast approaching. This year it falls between 12-18 October. It’s a time to recognise, celebrate and raise awareness about...
Top-5 Frequently Asked Questions from June 2025
Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top 5 questions we’ve been asked lately from across NSW, ACT and N...
Supporting your loved one at end-of-life: General strategies for carers
MND is currently a life limiting illness. As it progresses, carers will find themselves in the position of supporting their loved one with MND at end...
Episode 3 of Conversation with a Neurologist is Out Now!
In this episode, Dr Sadaf Warraich speaks with Professor Steve Vucic, who discusses current MND treatments including Riluzole, Edaravone and Toferson...
Biobank, Organ & Tissue Donation: DonateLife Week
DonateLife week is a national awareness campaign that takes place each year in July. This year’s campaign is from Sunday 27 July – Sunday 3 August 202...
Community Fundraising Champions – Jo Moroney
Since 2015, Jo Moroney has been hosting the Dale’s Day cricket match in honour of her son Dale Kenny. Sadly, Dale was diagnosed with MND when he was j...