The MND NSW e-news November 2019 edition was emailed to members and subscribers on 1 November. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.
MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.
What an amazing turn out to the first Walk to d’Feet ever held in Young. We had 272 participants who got involved and helped us to raise $20,352 to date! To put this in perspective, this money could buy an electric wheel chair 4 shower chairs and 4 transfer belts and make a real difference to people living with MND. We would like to acknowledge the support of the amazing local businesses who helped us make it such a special day including; Jaclyn from That Coffee, The Lions Club of Young, Chloe from Clicky Cookies,Molly from Moava, Bev Moloney & her wonderful preserves stall, our face painter Katie, Toni from Salami Bros Pizza, Stephen from Whip 1 4U Ice Cream Van and Sheree from the Criterion Hotel.
‘The support we’ve had from the community is inspiring. We couldn’t be more thankful to those giving up their time to help us in this important cause.’
—Graham Opie, CEO at MND NSW.
We can’t thank everyone who got involved enough for making the walk so successful and bringing along family and friends (and of course pooches) to show support for people living with MND and their loved ones. Together, we’ve made a real difference in the lives of people touched by MND.
Are you ready to travel to the heart of Australia? This is your chance to explore one of our country’s most breath-taking outback trails, all in the name of an important cause. MND NSW is inviting you (yes, you!) to join us on the March for MND 2020. This will be an opportunity to discover the heart of Australia, learn more about our Indigenous culture and show your support for those living with motor neurone disease, their carers and families. The funds you raise on the March for MND 2020 will go towards providing essential services and support for people living with MND. We’ll be here to provide fundraising support every step of the way on this incredible journey!
Click the following link to learn more https://inspiredadventures.com.au/events/mndnsw-larapinta-2020/
The School of Psychology at the University of Adelaide is looking for volunteers to complete a brief survey about mental health and ageing. The survey will take about 15 minutes and you can enter the draw to win a $150 EFTPOS gift card. The information from the survey will contribute to understanding how mental health symptoms differ for men and women across the lifespan, leading to better recognition and diagnosis of mental health problems. Take the survey The study has been approved by the University of Adelaide Human Research Ethics Committee (approval number H-2019-109).
Leading international ALS/MND researchers are providing the MND community with the opportunity to ask questions about latest research advances from around the world at the 2019 International Ask the Experts on 2 December in Perth. If you can't attend, register for the live stream. Speakers include Professor Matthew Kiernan AM - (Australia), Professor Ammar Al Chalabi (UK) and Professor Merit Cudkowicz (USA).
ALS Untangled is an international network of physicians and researchers investigating alternative and off-label treatments for ALS/MND. People with motor neurone disease (known as amyotrophic lateral sclerosis or ALS in some parts of the world) often consider alternative treatments, based on information gleaned from the internet. These can be expensive and some are potentially harmful. Moreover, the evidence presented for the efficacy and safety of these treatments is often sketchy and frequently inaccurate.
Over 150 occupational therapists, speech pathologists, physiotherapists, dietitians, social workers, COS, MND Clinic Coordinators, doctors and others from across NSW and beyond attended the 8th Biennial MND NSW Special Interest Group (SIG) workshop on 2 July 2019 at West Ryde. This year the MND SIG workshop was at capacity six weeks out from the event. It is a positive sign of the commitment clinicians and community care professionals who work with people living with MND have to improving their knowledge and clinical practice for the benefit of those living with the disease.
MND Australia, in partnership with MND WA, is proud to host the International ALS/MND meetings in Perth in 2019. This will be an opportunity for the Australian MND community to come together with their peers and leading international researchers from around the world to present and debate key innovations in their respective fields. All meetings will be held at the Perth Convention and Exhibition Centre.