While there is still much to learn about motor neurone disease (MND), understanding of this complex condition is continually improving and there are many researchers using a variety of techniques to develop potential new treatments.
MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.
While caring for a loved one with MND can be very rewarding, it also involves many stressors. It can be difficult for carers to find time for themselves and since caregiving can be an ongoing challenge, the emotional impact can snowball over time. And so, it’s important to remember that carers also need to take time out to care for themselves so they can continue to provide the best care for others.
We are back in 2021 with a host of online events and get togethers, so we can continue to share information and make connections within our community.
We hopefully will also be able to resume our in-person support groups, but more information to follow on this in January. Keep an eye on our events page and social media for updates.
One day, motor neurone disease will take everything from Sharon. Until then, will you help her make the most of life?
You may have received our Christmas appeal in the mail recently sharing the story of Sharon and her family but we really wanted to share Sharon’s story with you again as it’s one that really hits home about the effects of MND—but it’s also one of hope as we see the amazing strength so many in our community show every day, just like Sharon and her family demonstrate.
The Ambulance Service of NSW has developed two types of care plans to help ambulance staff to make the best decisions in the event of an emergency. Ambulance Care Plans authorise paramedics to provide individually tailored treatment based on the directions documented in their plan by their health practitioner.