MND NSW staff member, Nicole, opens up about her experiences with MND 

I am quite often asked, ‘How can you work where you are?’ and always my reply is ‘It’s the most rewarding job I have ever done in my life.’ And I’ve done quite a few.

I would like to thank everyone for getting behind MND Week by sending in your photos and quotes as part of our MND Week celebrations. The sense of community that they generated was both moving and humbling to watch as each image and story was revealed. We are a strong community and together we can and do make a difference in each other’s lives.

So what is happening with education for people living with MND, their family and friends and for the service providers now that our face to face sessions are suspended?

With changing times we now have an opportunity to deliver our education programs in a different way and has opened the way for innovation in ensuring everyone still can access information when they want it. We are now working to have many of our education and carer programs available as on demand online versions.

You may have received our Winter Tax Appeal in the mail asking for your help so we can continue delivering life enhancing equipment directly to people living with MND. People like Liz* who rely on our FlexEquip service so she can spend as much time as possible with her loved ones.

This Cornflower Blue Day dedicate a virtual cornflower to a loved one who is living with motor neurone disease (MND) or in remembrance of someone who has died.

We know you’re missing our Walks (so are we!) and like most of us, maybe you need a little motivation to get moving—it’s why we’ve joined forces with the other state MND Associations to bring you a virtual challenge event for these crazy times we find ourselves in, Australia Moves for MND!

During MND Week (3^rd to 9^th May 2020), we’ll be posting images and thoughts from our incredible MND community. If we can’t get together physically, we can still celebrate, remember and share virtually the importance of this week to us all.

If you don’t know me,

I’m nothing to you.

If you do know me,

I’m the equivalent of hell.

I’m known as the beast.