"I had a lot of difficulty in finding information. I also didn’t know what I didn’t know" Paul Watson, MND NSW Member, has been the driving force behind our latest online resource I have MND. Now What? and it is one of the many resources that your support has helped fund for all people living with MND. Thanks for your support!
I have MND. Now what?
Latest News
Congratulations to all 2026 NSW Volunteer of the Year Nominees
We love to celebrate how special our volunteers are, and the amazing work they do for us! After being nominated for 2026 NSW Volunteer of the Year awa...
Calls for Urgent Action on Aged Care Assessment Tool
MND NSW supports MND Australia's calls for greater transparency about the outcome of the Government’s review of the Integrated Assessment Tool (I...
QALSODY (tofersen) Listed on the PBS
MND NSW and MND Australia have joined FightMND in welcoming the Australian Government's decision to list QALSODY (tofersen) on the Pharmaceutical Bene...
Top 5 Frequently Asked Questions from August 2026
A diagnosis of Motor Neurone Disease (MND) can raise many questions for the person receiving the diagnosis as well as their family, friends and suppor...