MND impacts the lives of many – the person with MND, and their family and friends. Today we are posting a survey to the family carer of MND NSW members who died from MND in 2016, 2017 and 2018. The survey is part of a research study being conducted by La Trobe University which hopes to gain insight into the experiences of family carers whose family member died from MND between 2016-2018. This valuable information will help us to better understand the needs of carers. We encourage you to participate if you receive a survey in the post by completing and returning the survey in the reply paid envelope provided by 5 June. Alternatively you can complete the survey online at https://is.gd/mndbereavementsupport. If you prefer a paper copy and you have not received one in the post by 23 May, please let us know. If you have any questions regarding the study, please contact Leanne Jiang on
Survey for family carers whose family member died from MND between 2016-2018
Latest News
Research Opportunity: Understanding the Role of Motor Neurone Disease (MND) Care Coordinators
Researchers from the University of New South Wales are seeking to better understand the role of MND care coordinators, and they need your input.They a...
Research Opportunity: Imaging Research Study in Neuromuscular Disorders
Want to help researchers better identify how neuromuscular disorders like MND affect the brain over time? Researchers from the University of Sy...
Top 5 Frequently Asked Questions from March 2026
The MND NSW InfoLine answers hundreds of questions from people living with MND as well as their families, carers, and health professionals. This blog...
A Letter from PJ Two - Adventuring to Albury
We're always excited to see our MND NSW Puppies go to good homes. So we were especially thrilled to receive this update on the latest adventures that...