About MND NSW

2 page leaflet including a brief description of motor neurone disease and the services provided by MND NSW.

• free online
• hardcopy available - free for members and others

(c) MND NSW published January 2021

2 page leaflet describing how MND Advisors assist people with motor neurone disease identify the services they need and offer ongoing information to families and service providers as questions arise or needs change.

• free online
• hardcopy available - free for members and others

(c) MND NSW published August 2015

2 page leaflet describing how MND NSW manages the privacy protection of personal information provided to our organisation.

• free online
• hardcopy available - free for members and others

(c) MND NSW published May 2014

Rights Responsiblities and Feedback

2 page leaflet describing rights and responsbilities, and how you can make compliments or complaints about our services.

• free online
• hardcopy available - free for members and others

(c) MND NSW published January 2021

MND NSW Whistleblower Policy 

8 page document.

• free online
• hardcopy available - free for members and others

(c) MND NSW published December 2021

Continuity of Supports Policy

An emergency is a situation of grave risk to health, life or environment. Key to being ready for any disaster is having a known and understood plan by all parties. In the event of an emergency, MND NSW will:

• inform participants of the current situation and how the provision of their services and workers may be impacted
• consult with participants and support networks on the plan’s development and any adjustments or changes in circumstances. Always ensuring that they are informed of what will occur before, during and after any disaster or emergency.
• continue to provide participants with the same key workers if they are available. If they are not available, we will replace unavailable key workers with other experienced workers who have the knowledge and skills to provide appropriate care to the participant
• inform the participant of any service changes and outline reason/s for these changes.